Important Notice

The contract for provision of public health services (Integrated Sexual Health Service) provided by York Teaching Hospital NHS Foundation Trust has been extended by both North Yorkshire County Council (NYCC) and City of York Council (CYC). North Yorkshire AIDS Action (NYAA) have been offered an extension until 30thSeptember 2018. Following this extension, NYAA will close and HIV support services after 30th September 2018 will be provided by York Teaching Hospital NHS Foundation Trust.

Positive Support Services in North Yorkshire and York

yshNYAA provides support for people in North Yorkshire and York who are living with or affected by HIV. From 1st July 2015, our support services will be delivered as part of our Partnership with York Teaching Hospital NHS under the recognised name YorSexualHealth.

 

On this website, you can find more information about who we are in the “About NYAA” section and what we do – what services we can provide – in the “Services” section. There is also an overview of information about HIV and HIV treatment in the “Information About HIV” section, with suggestions on where to find reliable, more detailed information. And there is also a “News” section, for news not only about NYAA, but also about things to do with HIV that might be of interest.

You can find our contact details here.

Topics on this page include the following: you can jump to them by clicking on the headings below:

Latest HIV Treatment News

Antiretroviral Fact sheets

Aidsmap has produced a useful summary sheet of the major ARVs used in the UK:

http://www.aidsmap.com/resources/Antiretroviral-drugs-chart/page/1412453/

There are also one-page, more detailed, fact sheets for every drug:

http://www.aidsmap.com/resources/Antiretroviral-drug-factsheets/page/3121474/

These are useful summaries in everyday language, and easier to read than the huge factsheets supplied by the drug companies.

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Latest HIV General News

Standards of Care for People Living with HIV

At their conference last week, BHIVA issued the 2018 revision of the Standards of Care (SoC) for PLWH. This is a really important document. It focuses on ALL aspects of care, not just ART. There are really 3 “audiences”:

1. Anyone providing any sort of care to PLWH – so that they can see what is expected of them, and measure their performance;
2. Anyone commissioning services (like government or local authorities), to see what is needed and how to measure impact;
3. Anyone receiving services (so anyone living with HIV), so that they can see what is available and what should be expected to be provided.

The document took quite a time to prepare, involving a multi-disciplinary team with clinicians, service providers, commissioners, and most importantly, groups and invidividuals from the voluntary sectors, and those living with HIV. Our voice as PLWH was loud, present in every section, and listened to.

You can read or download the document here:

http://www.bhiva.org/documents/Standards-of-care/2018/BHIVA-Standards-of-Care-2018.pdf

You will see that these SoC are extremely patient-centric and patient focussed, and emphasise the role of peer support throughout.

The SoC are long and detailed and not that easy to read for a “typical” patient…so BHIVA has promised to produce a more patient-friendly summary of the key points from a patient’s perspective. They will of course involve patients in the writing of this…but it is a few months off, yet, it seems.

Interestingly, the press release from BHIVA for this document started like this:

“There should be no doubt that a person with sustained, undetectable levels of HIV virus in their blood cannot transmit HIV to their sexual partners,” Professor Chloe Orkin, BHIVA Chair.

The impact of U=U is huge, and appears in almost every section of the SoC.

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Latest NYAA News

NYAA Privacy Notice 2018

In May 2018, new data protection laws come into effect, called the General Data Protection Regulation (GDPR). The GDPR is a regulation from the European Union which is intended to strengthen and unify data protection for all individuals within the EU. The document is the sum of four years of work by the EU to bring data protection legislation into line with new and unforeseen ways that data is now being used and stored.Currently, the UK relies on the Data Protection Act 1998, which was enacted following the 1995 EU Data Protection Directive. However, this will now be superseded by the new GDPR legislation. GDPR introduces tougher fines for non-compliance and breaches and gives people more say over what companies can do with their data. It also makes data protection rules more or less identical throughout the EU – and is now enforceable in the UK despite Brexit, as it has now been enshrined into British law.
The legislation is principally designed to give people more control on how their personal data is used in a time when services like Google and Facebook swap access to data for use of their platforms. However, it applies to all businesses and charities, and so will affect us at NYAA as well.Keeping your personal information safe and secure is one of our key priorities. That’s why we want to notify you of some changes in NYAA’s privacy policy,  in readiness for the introduction of the new GRPR on 25th May 2018. You can see full details of NYAA’s policy here.There is more information on the GDPR here.If you would like any more details or have any comments or questions, please do not hesitate to contact us on 01904 640024.  Or you can contact us by email by filling in the form below.